Autism Awareness
We, at LYLBTB, are delighted to be part of the RJ Scott Autism Awareness Blog Hop. Our very own Starbrites holds this cause very close to her heart – so thanks Jen, for spearheading this post, and for sharing your story ❤ ❤
Autism Fact : Everyday life for people with autism can be confusing, frightening and lack meaning.
MY son is autistic. He will be 15 soon and it has been a journey of nothing but patience – I have always been someone who doesn’t have any of it. If I wanted something, I wanted it right then. If I was waiting for someone, I wanted them to hurry up and get here already. But with an autistic child you do nothing but wait and you have to have the patience for it. My kid taught me that and is still teaching me that after many years.
When he was first born he was perfect. Yes, I know every parent thinks their child is perfect and that’s because they are. They are perfect in our eyes and they always stay that way no matter what challenges come up, but in this case he was perfect. He did everything on time just like any other child of his age and then one day it all stopped. No more mama, no more dada, it seemed like he was decreasing in everything that he had learned. He skipped crawling and went straight to standing up in the middle of a room and then walking. They said skipping crawling was a sign of a problem but I didn’t believe that. I mean my kid just stood up and started walking, he was a genius. But then we couldn’t even get him to say any basic words and I started to panic. I took him to his doctor and he said “he was fine.”
Then the ear infections started and they never seemed to stop. Once again his doctor said “he will just grow out of it.” WRONG. I found him a new doctor, one I am proud to say is still his doctor and happens to be the best thing that ever happened for him and for us. He was concerned, my child was a second away from becoming deaf, he needed to have tubes and eventually his hearing got better but the rest of him stayed the same. When he was 2, I took him to two different neurologists because the first said “your son is autistic” and I laughed in that doctors face and told him he was an idiot and there was nothing wrong with my kid. Then I took him to another neurologist who is still my sons neuro today and he said “I am sorry but he is autistic, ADHD and cognitive impaired.” Well, it’s hard to fight a second opinion but that doesn’t mean I didn’t try. I had to wait and wait for things to happen. It was a very slow process and having patience, something I never had, was difficult. Waiting for my son to speak, to potty train, to play with others, worrying that he would never make friends or do things like the other children his age did.
The list goes on and on, but I can tell you the very first time he finally said “I love you” was the best day of my life and the waiting and having patience for it to come was worth it. He taught me and still teaches me patience everyday. Now at almost 15 years old, I am still waiting for him to do things and each time he achieves it, the patience was worth every hour, every minute and every second I had to wait for it.
We are giving away 3 – $10 gift cards to the retailer of your choice. All you need to do to be entered in our giveaway is comment below. The giveaway will close on April 13, 2014 and winners will be chosen and posted before the end of the week.
We’d also really appreciate it if you would share our post and any other blog posts for the autism blog. For full Blog Hop List follow the LINK.
Spread the word for autism awareness. Thank you!
Thanks again, Jen, for such a personal post ❤ ❤
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You’re welcome! The topic is to important to me not to share. Thank you for letting me put it out there. 🙂
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It must be difficult to believe your child has a problem and I’m so pleased it was diagnosed when he was quite young. This blog Hop is a great idea to highlight Autism.
ShirleyAnn@speakman40.freeserve.co.uk
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Yes, finding it so early really made a huge difference for him. I’m 100% positive things would have been so much worse had it not been found till he was older.
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You have a beautiful story to tell…each step…each thing that in the flow of life that is considered normal is special and memorable to you. I could tell you over and over again about my cousin Kennadi…she’s strong and beautiful and the smartest kid I know, but it’s not always easy…but those easy days…those easy days are wonderful and if we’re lucky we get to experience something truly special–a hug, a kiss, an i love you. Yep, it has its hard days, but the good days, the special days are amazing.
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Yes, they really are. 🙂
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I worked well over a decade in Special Education, a third of that specifically with autistic children. You really are lucky you were able to get an early diagnosis. I also think you’re doing a fantastic job of advocating for your son in terms of healthcare.
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Thank you. Yes, I was very lucky. I just couldn’t understand his decrease and the more things he lost the more scared I became. I couldn’t let it go and after finding out and accepting what was wrong, I got him enrolled into a PPI class and that alone made a huge difference.
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Thanks for sharing about your son, and the joy of each achievement obtained through time and struggle.
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🙂
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If there is one thing that I as his grandma would say, the day he was born the sun rose in my heart and it still shines today.
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xoxoxo
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Love you Jen and I know what a strong independent and wonderful mother you are! Thanks for sharing!!!
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Thank you for saying so. Love you too!
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Wow! Thank you for sharing this truly amazing journey you are on! Beautiful.
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Thank you Shay!
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Thank you for sharing about your son and for taking part in this hop to help spread awareness.
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🙂
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Thankyou for sharing your story – seeing Grandma’s comment gave me a tear!
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🙂
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She doesn’t do much Internet stuff but was all on me about telling her how to post.
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Great post Jen. You really did open up and share an important abd private part of your life.
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Thank you
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Your son is beautiful! Thanks sharing him with us. I’m learning so much from this amazing blog hop!
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Thank you! This blog hop is fantastic, right? RJ Scott has provided us with so many amazing facts about autism and seeing others post about their own personal journey is such a wonderful thing. I’m learning all kinds of things from this blog hop. Each day I look forward to seeing what others have to say.
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Very personal post Jen thank you. The strength and love of mothers like you never cess to amaze me.
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Thank you 🙂
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Beautiful… my son was 15 on the 1st of April… 🙂 Thank you so much for taking part… HUGS XXXXXXXXX
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Thank you and thank you for putting together this amazing blog hop.
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thanks for sharing jen. my dad was diagnosed with aspbergers when he was 50 years old. he always knew something was ‘off’ but at the time he was growing up autism was not a term anyone knew so my dad had always been labled as stupid. when my brother and i were diagnosed w/ learning difficulties that encouraged him to seek answers. and it made a world of difference to him to be told he wasn’t stupid and there was a very real reason he had some of the troubles he had
parisfan_ca@yahoo.com
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Thank you for sharing. Even though it took all those years, I’m glad your dad was finally given some piece of mind. I can’t even imagine what it would be like to go all those years not knowing what was truly wrong.
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Love your post, thank you for sharing! M8231m@aol.com
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🙂
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Maggie!! You are one of the winners – please send us your email details, as well as if you have a preference of store (Amazon, Riptide, B&N, ARe etc) for the $10 e-book gift certificate, via the link on the side bar – so we can get this out to you asap!
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Thanks for sharing. My son has ADHD and a whole host of other issues. People usually don’t share these kinds of things about their children and it leaves people feeling all alone in their struggles.
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You’re right, people don’t usually share these things and sometimes I think it’s because as a parent they feel like they’ve done something wrong or that it’s their fault (I thought that way myself for a very long time.) Which of course is crazy. It’s nobody’s fault. Things happen and there is nothing that can be done about it. Sometimes it just is.
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Thanks for sharing. My cousin has Aspergers. Its great to see all this hop to get awareness to more people.
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🙂
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Thank you so much for sharing your story!
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🙂
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Trix!! You are one of the winners – please send us your email details, as well as if you have a preference of store (Amazon, Riptide, B&N, ARe etc) for the $10 e-book gift certificate, via the link on the side bar – so we can get this out to you asap!
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Thank you for sharing your story. It is so important that people do share their experiences because the more everyone knows the more help can and will be provided and probably most importantly the more everyone will become more accepting.
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I agree with you! 🙂
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Thank you for sharing your story and the beautiful photos. I completely understand the impatient thing. I am the same way. I can only imagine how strong you have had to be and I admire you for it! Although our children can make everything worthwhile.
jen.f {at} mac {dot} com
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Thank you very much. 🙂 They really do make everything worthwhile. They are the greatest gift we could ever get.
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Oh Jenny! Your a great Mom! You never gave up.. we are all so proud of you and Matt! Hes come a long way and so have you friend 🙂
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Thank you! *hugs*
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What a touching post. I wish you and your son all the best for the future.
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Thank you!
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Your son sounds amazing 🙂 and I’m sure he appreciates having you be there for him – I know I adore my Mum for every time she’s ever supported and encouraged me 🙂 Good Mums can never be praised enough!
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Thank you! He is definitely an amazing child and you’re so right about good moms. 🙂
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Thank you so much for sharing your story with this. Things like this are so inspiring to hear!
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Thank you 🙂
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Great blog, Jen! Glad to know others are struggling. I’ve got one with ADHD and exec dysfunction that is on the spectrum; the second son is extreme ADHD, cognitive delayed, language delayed and sensory disorder and on the spectrum too. Neither is classic autism but boy do they have characteristics. I know the struggles of which you speak and the joy you feel in just the small progress you see. Hang in there, we’re together in this struggle! Heidi
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Thank you!
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Heidi!! You are one of the winners – please send us your email details, as well as if you have a preference of store (Amazon, Riptide, B&N, ARe etc) for the $10 e-book gift certificate, via the link on the side bar – so we can get this out to you asap!
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Yea!! I’m a winna!! 🙂 heididuckhard@gmail.com is my email, and amazon is my preference 🙂 Thanks!!!!
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Thank you for sharing your story and the wonderful photos of your son with us!
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🙂
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Thanks for sharing Jen. My nephew is autistic. He is a junior in college with an excellent gpa. He does not like loud noises, unless he makes them. He loves Japanese Manga and took classes to be able to read some of them. We like to go to animated movies together, so I took him to a midnight showing as a treat.
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That’s pretty awesome. 🙂 My son is totally infatuated with history. All kinds of history. Just went to the Holocaust Museum today and loved it.
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My son is going to the Holocaust Museum next week! He loves history too, WWI and WWII especially so should love it as well!
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Thank you for sharing!
spamscape [at] gmail [dot] com
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🙂
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Heidi, Trix and Maggie were the winners – thanks to everyone for commenting! And Jenn and her son – thanks again for sharing your story ❤ ❤
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